Celebrating Heroes 2023: Beacon of Hope
365 DAYS, 4 COMMENDABLE SIBLINGS, 3 SELFLESS CAREGIVERS AND 1 OUTSTANDING SIBLING WITH ONE COMMON MOTIVATION – A LOVED ONE.
Celebrating Heroes, an original event by Club Rainbow (Singapore) has been honouring countless caregivers and siblings over the decade. Taking a hiatus from 2021, we continue to recognise these heroes walking in our midst.
Starting as Caregivers Appreciation Day, the event evolved to Celebrating Heroes (CH) in 2015, where the first Exemplary Caregiver Award was presented. Whilst the common saying goes ‘it takes a village to raise a child’ but the most important support comes together as a family unit. Siblings are often forgettable when immediate priorities surround children with chronic illnesses. Acknowledging these young ones as part of the core support system of the family, we appreciate outstanding siblings too who share the daily responsibilities of caring for their brother or sister together with their parents.
Exemplary Caregiver Awardees Panel Discussion
This year, we received numerous nominations for many caregivers and siblings from all walks of life and even ages. After many tear-jerking encounters from the interviews with nominated caregivers and siblings, we are proud to share this year’s Celebrating Heroes 2023: The Beacons of Hope – 1 commendable sibling, 3 selfless caregivers and 4 outstanding siblings! These awardees are true representatives of the many caregivers and siblings of Club Rainbow who give their time selflessly to their loved ones.
Joanna Yap and her daughter Amelia, Exemplary Caregiver Awardee
Meet Joanna Yap, mother to Amelia and one of the Exemplary Caregiver Awardees. To help Amelia reach her fullest potential, she spares no expenses in finding activities, interventions and different resources that will be able to enrich Amelia in her swimming abilities and baking skills. From enlisting the help of her friends to impart baking skills and bible knowledge to Amelia so that she will be able to learn things that are outside of her school curriculum. To developing Amelia’s passion in baking and now enrolled in a pastry course in Delta Senior School.
She has done a lot beyond just being a mother; ensuring that Amelia works towards the goal of becoming a national swimmer; becoming a kindergarten teacher so she could be better equipped to teach Amelia.
Exemplary Sibling Awardee, Wen Xin
As much as Wen Xin remembers, her brother was born normal and she always loved playing with him, taking care of him and being the older sister. At the age of 6, Wen Jie was diagnosed with a rare condition, leukodystrophy. He then received a bone marrow transplant operation: however, after the operation his condition deteriorated and began to lose his speech, sight and physical ability.
Wen Xin shows great responsibility in caring for Wen Jie especially when their parents are not around, Watching her brother’s lost of ability first hand at a young age has caused her lots of distress growing up, needing the help of art therapy. However, she uses these experiences to share and help others who are going through similar situations.
Now at the age of 18, Wen Xin is one of the- Exemplary Sibling Awardees. She is helping Wen Jie with his daily needs like suctioning and NGT feeding. She is not only able to take care of Wen Jie but her other younger brother as well. She is also a part of our programme, Youths for Rare, where she took part in a human library project with NUS and NTU school of medicine where she shared her journey with Wen Jie to medical students, showing great determination and courage to fight alongside her brother.
To hear more of our awardees, watch the Celebrating Heroes 2023 videos here:
Dreaming The Future!
1, 2, 3! and we are in 2023!
In a blink of an eye, we have concluded our 30th-anniversary celebrations with three cheers! Hooray!
Looking back over three decades, we have served numerous children with chronic illnesses and their families. Some of who have made a tremendous breakthrough and become independent, active contributors to the community whilst co-existing with lifelong illnesses. Others have gone before us, having loved ones work through grief and loss workshops with the support of Club Rainbow’s dedicated team of social workers.
From caring for the beneficiaries’ well-being and basic needs to ensuring the deliverance of relevant services based on curated individualised care plans, we see harmonious collaboration between caregivers, social workers and supporting partners. Last year, we welcomed the opening of Sandbox where the heart of creativity, confidence and talents are discovered and nurtured through various programmes held at the centre. Believing in equal opportunities for beneficiaries with medical conditions or developmental issues, the launch of the early childhood programme prepares children for school in areas like reading, writing, etc. The programme embodies our values of respect and resilience, providing a sense of belonging for the beneficiaries all while preparing the children for compulsory education. It ran its first intake in January 2022 and is in its 3rd run this year.
Before the yearend, we introduced a new 3-part series programme under Vocational Development, Bake under the Rainbow. The new initiative covered the basics from Food Safety, Baking sessions to the Bake Sale. The first run of the bake sale was in conjunction with Ride For Rainbows 2022 and the 30th Anniversary Birthday Bash at the Marina Barrage.
Truly this is the ecosystem we want for the children and their families. Dreaming the future with a network of support from the community who comes together as donors, volunteers, partners and corporate to pull resources from various aspects to engage with the beneficiaries and their families.
We have come this far, so what’s next?
Look out for
• New charity merchandise coming in Q2 2023!
• Pre-order of patisserie by our very own caregivers.
• More events coming back, and more volunteer opportunities!
• And what is #CRSUnited? Find out in our next news scoop!
To support our initiatives, begin your journey with us by contacting us via contact@clubrainbow.org.
Sign up for our newsletter and stay updated on the progress of the children and their families!
Celebrating Heroes 2022 : Beautiful Inside & Out
365 days, 7 families, 5 commendable siblings, 4 selfless caregivers and 3 outstanding siblings with one common motivation – a loved one.
Celebrating Heroes, an original event by Club Rainbow (Singapore) has been honouring countless caregivers and siblings over the decade. Taking a hiatus from 2021, we continue to recognise these heroes walking in our midst.
Starting as Caregivers Appreciation Day, the event evolved to Celebrating Heroes (CH) in 2015, where the first Exemplary Caregiver Award was presented. Whilst the common saying goes ‘it takes a village to raise a child’ but the most important support comes together as a family unit. Siblings are often forgettable when immediate priorities surround children with chronic illnesses. Acknowledging these young ones as part of the core support system of the family, we appreciate outstanding siblings too who share the daily responsibilities of caring for their brother or sister together with their parents.
This year, we received numerous nominations for many caregivers and siblings from all walks of life and even ages. After many tear-jerking encounters from the interviews with nominated caregivers and siblings, we are proud to share this year’s Celebrating Heroes 2022: Beautiful Inside & Out awardees – 5 commendable siblings, 4 selfless caregivers and 3 outstanding siblings! These awardees are true representatives of the many caregivers and siblings of Club Rainbow who give selflessly of their time to their loved ones.
Exemplary Caregiver Awardee, Mr Gan Keng Aik together with Mr Tan Chuan-Jin, Speaker of Parliament Singapore (left) and Dr Sashikumar Ganapathy, President of Club Rainbow (Singapore).
Mr Gan, father of Aloysius and one of the Exemplary Caregiver awardees shared, ‘every parent must dare to dream that their kids can have a dream!’ Mr Gan supports his son’s passion for Boccia as a coach and athlete competition partner. Aloysius has been representing Singapore in the Asian Youth Para Games (AYPG) for Boccia and brought pride to Singaporeans with his first gold medal from the Bahrain 2021 AYPG. Sharing similar sentiments, Karen who is a teacher, a mother of 2 children and a caregiver 24/7 for her son, Mikkel, strongly believes that no child is the same as another. Putting a lot of effort into learning special education techniques and therapy exercises, she hopes that Mikkel would be as independent as he can. Through Karen’s perseverance and guidance, Mikkel has achieved many goals and skills, which were far from an imagined possibility at the point of his diagnosis.
Sharing the same room since the birth of his little brother Yao An in 2008, Yao Kang has been a key part of his brother’s life even before the diagnosis of Yao An’s rare disorder in 2013. He was an elder brother to whom Yao An looks up and bonded very closely. With his brother’s condition degenerating over time from verbal to non-verbal, Yao Kang has never given up on communicating with this little brother and spends his daily life playing music with Yao An to encourage sensory stimulation. A Year 3 student at Lee Kong Chian School of Medicine now, though with a demanding academic schedule, Yao Kang still makes time for Yao An. An avid supporter of siblings with special needs, Yao Kang recognises the important role of siblings in a family unit. He is the co-founder of SibsUnite, a volunteer-run organisation.
Like Yao Kang, Auni, an Exemplary Sibling awardee of 2022, takes care of her little brother, Royyan while her mother is at work since the passing of their father. The 11-year-old has stepped up to support her mother in caring for Royyan by encouraging him on every single step of his daily essentials, guiding him on how to get home, helping him with personal care, and supporting Royyan with his academics.
To hear more of our awardees, watch the Celebrating Heroes 2022 videos here:
Exemplary Caregiver Award 2022
Exemplary Sibling Award 2022
“It’s not what you look at matters, it’s what you see.”